patching...
Welcome back, Patch Blogger!

Batten Disease

Monday, January 28, 2013

Rock the Reel at McGonigal’s to Benefit Bridget, Rare Disease Campaign

Event includes two bands, film screening.

  Two Hearts Rock, a Lake Zurich area non-profit, will host  “Rock The Reel,” a unique medical Benefit and film screening designed to raise awareness for rare disease, at 6 p.m., Saturday, Feb. 2, at McGonigals Pub in Barrington. The event features live music by Tanglewood Tales and Between the Lines.  Tracy VanHoutan, founder of Noah’s Hope, will be the master of ceremonies at the event which will feature a free screening of The Ewing Marion Kauffman Foundation Film, "Here.Us.Now. - A Family's Fight to Bring Medical Innovation Home.” Motor Werks of Barrington and MJ Miller & Company are leading sponsors of this event along with personal donors from the Barrington community who support Hope 4 Bridget on a regular basis. Proceeds will …

Thursday, May 17, 2012

Two Chicago Bear Greats to Help Tackle Rare Disease

Brian Urlacher and Lance Briggs will be signing autographs at Lake Barrington Field House to support the fight against Batten Disease.

Despite being afflicted with a rare and debilitating neurodegenerative disorder known as late infantile Batten disease, which has left 7-year-old Bridget Rose Kennicott without vision and without her ability to cheer for her beloved Chicago Bears. But it has not stopped her from supporting the team, according to her mother. “She’s a huge Bears fan,” Sara Kennicott said of the countless Sundays Bridget would spend with older brother Harrison and father, David, cheering the Bears to victory. “The whole family is Bears fans.” But now it is the Chicago Bears, specifically all-pro linebackers Brian Urlacher and Lance Briggs, who are supporting Bridget. Urlacher and Briggs "don't usually do events," said Wayne Jett of Sideline Marketing. "And …

yanko

5:47 pm on Monday, June 11, 2012

moiata dacgteria sachtniam podobrenie molia pomognete mi da se svarja s niakoi koito razbira naistina oi tazi bolesto bolna ot zeroid lipo fuszenoza i za sega   more ›

Got a Hot Tip?